Story

My granddaughter was born with OA/TOF. Her oesophagus and trachea were fused and she had an operation within 24 hours of being born. The charity tofs have already been brilliant in supporting all the family, especially our daughter and son-in-law, to understand and cope with the challenges we are facing as a result of this rare, lifelong condition.

To support the tofs charity I am giving myself the challenge of completing the equivalent of 4 marathons over 4 months.Over each month I will do 9 x 5km runs and record the runs on MapMyRun.

Please support me in my challenge so I can support the charity which gives lifelong support for those born unable to swallow.

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Updates

Today I finished the challenge. My quickest 5km over the four months was 32.26. I ran locally and on holiday and while staying with the family and when they stayed with us! I ran a total of 41 times (surpassing my target, good to have a few in the bag in case of hiccups!). I will continue to run, though may have a little rest first!

Once again thank you for the support and thank you tofs you are a great organisation. 

Updated on Wed, April 29 2026, 7:46 PM

Thank you to everyone who sponsored and supported me over the last 4 months, especially Julie and Keith. Julie ran with me on many of the runs, as we ran we watched the seasons change, put the world to rights and encouraged each other. Keith encouraged me to roll out of bed, got breakfast ready for my return and supported me through the days when I was quite tired after a run.

The last four months our granddaughter, daughter and son-in-law have remained strong despite bumps in the road. Throughout this time the support from tofs has been so helpful. Mabel is going from strength to strength and her smile is contagious and infectious.

Updated on Wed, April 29 2026, 7:36 PM

Thank you everyone for supporting me, I've been blown away by the support you have given to me and TOFs. Thank you.

Updated on Wed, March 18 2026, 10:24 PM

HI

We're halfway through March and I can happily tell you that I managed 10 5km runs in February across 3 counties - Lincolnshire, Norfolk and Essex. It was a bit of a tricky month for Mabel at times but we're moving on with our smiley girl. She is a delight and joy and beginning to enjoy pureed vegetables for breakfast!

I have managed 6 runs so far this month and so am on track to complete my challenge for March (fingers crossed). Julie and I are looking forward to a few more mornings like this morning - dry, bright and sunny.

Updated on Wed, March 18 2026, 10:10 PM

Here's Mabel and I

Updated on Tue, January 27 2026, 6:14 PM

Thank you everybody who has donated so far. I have been overwhelmed by the support. 

I have now completed 9 runs in January. I have run in the snow and ice (on the verges),  around Harlaxton and Mulbarton. I have run with Digby, dog, and with my great running friend, Julie and I have run on my own. I hope to do at least one more run in January. Then bring February on!

Updated on Tue, January 27 2026, 6:09 PM

Supporting

TOFS

Live life unlimited

Our vision is for anyone born with OA/TOF to be able to live life unlimited.

We are working towards a world in which those born with OA/TOF live long and healthy lives, unconstrained by the impact of being born with these conditions.

£2,078.75 raised of £500.00 target by 56 supporters

£1,745.00 donated plus £333.75 in GiftAid

When

From the 1st January 2026 until the 30th April 2026

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